Privacy Center

Last Modified: Oct 15, 2024

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This policy describes the privacy practices of the New York Stem Cell Foundation, Inc., a New York State not-for-profit corporation (collectively, “NYSCF,” “we,” “our”, or “us”), only in connection with our online communications through our website (the “Privacy Policy”). 

We respect your privacy and are committed to protecting it through our compliance with this policy. This Privacy Policy describes the types of information we may collect from you or that you may provide when you visit the website: https://www.nyscf.org (our “Website”) and our practices for collecting, using, maintaining, protecting, and disclosing that information.

This Privacy Policy applies to information we collect:

  • On this Website.
  • In email, text, and other electronic messages between you and this Website.

It does not apply to information collected by:

  • Us offline or through any other means, including on any other website operated by NYSCF or any third party (including our affiliates and subsidiaries); or
  • Any third party (including our affiliates and subsidiaries), including through any application or content (including advertising) that may link to or be accessible from or through the Website.

Please read this Privacy Policy carefully to understand our policies and practices regarding your information and how we will treat it. If you do not want to agree to our Privacy Policy, or Terms of Use, you must not access or use the Website.  By accessing or using this Website, you agree to this Privacy Policy. This Privacy Policy may change from time to time. Your continued use of this Website after we make changes is deemed to be acceptance of those changes, so please check this Privacy Policy periodically for updates.

1. CHILDREN UNDER THE AGE OF 16

Our Website is not intended for children under 16 years of age. We make every effort to ensure that no one under age 16 may provide any personal information to or on the Website. 

We do not knowingly collect personal information from children under 16. If you are under 16, do not use or provide any information on this Website. If we learn we have collected or received personal information from a child under 16 without verification of written parental consent, we will delete that information. If you believe we might have any information from or about a child under 16, please contact us at privacy@nyscf.org.

2. INFORMATION WE COLLECT

We collect several types of information from and about users of our Website, including information:

  • Personal identification information such as your name, postal address, email address, phone number, and other personal contact information. 
  • Research and participation data, which includes information related to your involvement in research studies, such as consent forms and contributions to those studies. 
  • About your internet connection, the equipment you use to access our Website, and usage details.

We collect this information:

  • Directly from you when you provide it to us.
  • Automatically as you navigate through the site. Information collected automatically may include browser types, usage details, IP addresses, and information collected through cookies to enhance the functionality and performance of our digital platforms.

You also may provide information to be published or displayed (hereinafter, “posted”) on public areas of the Website, or transmitted to other users of the Website or third parties (collectively, “User Contributions”). Your User Contributions are posted on and transmitted to others at your own risk. Please be aware that no security measures are perfect or impenetrable. Additionally, we cannot control the actions of other users of the Website with whom you may choose to share your User Contributions. Therefore, we cannot and do not guarantee that your User Contributions will not be viewed by unauthorized persons.

3. HOW WE USE YOUR INFORMATION

We use information that we collect about you or that you provide to us, including any personal information for:

  • To present our Website and its contents to you.
  • To fulfill any other purpose for which you provide it.
  • In any other way we may describe when you provide the information.
  • Conducting research and developing scientific findings.
  • Communicating with participants and users.
  • Legal compliance and reporting.
  • ​​For any other purpose with your consent.

4. ONLINE DONATIONS

NYSCF collects the following information through our secure online financial-transaction pages: name, postal address, email address, phone number, and credit card information. This personally identifiable information is used to acknowledge receipt of your donation for tax purposes and to include you on NYSCF’s mailing list, if you choose to join.

When you send a donation in honor or in memory of someone and request that an acknowledgement be sent to another individual or a family, we will use the name and postal address of that individual or family for acknowledgement purposes only, per your request.

5. MAILING LIST

NYSCF provides a separate online form to join the NYSCF mailing list. The information that we collect include the following: name, postal address, e-mail address, and phone number. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year, either via email or regular mail.

Please contact us directly by email: development@nyscf.org, if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided. To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or making corrections. Callers will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date, in order to verify their identity and protect the privacy of the NYSCF’s donors and members of its mailing list.

6. SHARING YOUR INFORMATION

We may disclose aggregated information that does not identify any individual, without restriction.

We may share your personal personal information that we collect or you provide as described in this Privacy Policy:

  • To our subsidiaries and affiliates.
  • To contractors, service providers, and other third parties who are bound by contractual obligations to keep personal information confidential and use it only for the purposes for which we disclose it to them.
  • To fulfill the purpose for which you provide it.
  • To Institutional Review Boards (IRBs) for compliance with ethical research practices.
  • To collaborators, when required for research, and only with your explicit consent. 
  • To comply with any court order, law, or legal process, including to respond to any government or regulatory request.
  • To enforce or apply our Terms of Use

NYSCF is located and headquartered in the United States and may have service providers or engage third parties in other countries. Your personal information may be transferred to the United States or other locations outside of your state, province, country or other governmental jurisdiction where privacy laws may not be as protective as those in your jurisdiction.

7. DATA RETENTION AND SECURITY

We retain personal information as long as necessary for research and legal purposes. We implement security measures to protect your data from unauthorized access. We care about the security of your transactions and apply industry-standard practices and technologies to safeguard your credit card information. We use high-grade encryption and the secure https protocol to communicate with your browser software, which guards against interception of the credit card information you give us. We also employ several different security techniques to protect your personally identifiable information from unauthorized access by users inside and outside the organization. The web servers for the NYSCF are located in a locked, secure environment, and computer systems are maintained in accordance with industry standards to secure information. Please be aware that no security measures are perfect or impenetrable and third parties may unlawfully intercept or access transmissions or private communications.

8. YOUR CHOICES

You have the right to access, correct, delete, or restrict the processing of your data. Please refer to our DSAR form for more details on how to make a data request.

9. YOUR STATE PRIVACY RIGHTS 

State consumer privacy laws may provide their residents with additional rights regarding our use of their personal information. The exact scope of these rights may vary by state.

10. CHANGES TO OUR PRIVACY POLICY

The date that the Privacy Policy was last revised is identified at the top of the page. You are responsible for periodically visiting our Website and this Privacy Policy to check for any changes. We reserve the right to modify this Privacy Policy at any time at our sole discretion. Small changes or changes that do not significantly affect individual privacy interests may be made at any time and without prior notice. If we make material changes to this Privacy Policy, we will notify you by updating the date of this Privacy Policy and posting it on the Website. We may (and, where required by law, will) also provide notification of changes in another way that we believe is reasonably likely to reach you, such as via e-mail (if we have your contact information) or another manner, which may include posting an announcement on the Website.

Any modifications to the Privacy Policy will be effective immediately upon our posting. Your continued use of the Website following the posting of the revised Privacy Policy means that you accept and agree to the changes.

11. OTHER SITES

NYSCF is not responsible for the information or materials contained on sites linking to the Website. Links to the Website are provided for convenience of reference only and are not intended as an endorsement by NYSCF of the organization or individual operating the host site or a warranty of any type regarding the host site or the information on the host site. Other sites may follow different rules regarding the use or disclosure of the personal information you submit to them. We encourage you to read the privacy policies of the other sites you visit.

12. CONTACT INFORMATION

To ask questions, comments, or concerns about this Privacy Policy and our privacy practices, contact us at: privacy@nyscf.org. 

You can write to us at: 

Attn: Interim Data Privacy Officer, Jeff Wallerstein
New York Stem Cell Foundation, Inc.
619 W. 54th Street, Third Floor
New York, NY 10019 U.S.A.

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