Clinical Research Opportunities

NYSCF Scientific Discovery Biobank
New York Community Trust, Hearst Foundation

NYSCF is creating a research repository of biological samples, stem cell lines, derivatives, and data to support research into medical conditions. Researchers at NYSCF study diverse diseases, conditions, and traits by creating stem cells from biological samples – like skin or blood cells. Researchers also perform testing to learn more about genetic material, including DNA, which can identify risks of certain diseases. The samples and health information collected in this study will be stored and shared with researchers worldwide to promote better understanding of many types of diseases and help advance future therapies. The samples may also be used for genetic research. This study is available to anyone ages 30 days or older, whether or not they have a diagnosed medical condition. 

Drug Discovery for Parkinson’s with Mutations in the GBA Gene
The Silverstein Foundation

NYSCF is collecting skin and blood samples to create stem cells and screen thousands of drugs to learn whether they improve or reverse symptoms of Parkinson’s disease, with a special focus on mutations in the GBA gene which are common risk factors for Parkinson’s. We are also collecting saliva for genetic testing and health questionnaires. The samples and health information collected in this study will be stored and shared with other researchers worldwide to promote better understanding of Parkinson’s and help advance future therapies. This study is available to adults ages 18 and older with a diagnosis of Parkinson’s or Gaucher’s disease. 

Charcot-Marie-Tooth Disease: Biological Sample Collection for iPSC Generation and BioBanking
Charcot-Marie-Tooth Association

NYSCF is creating a research repository of stem cell lines to support research into Charcot-Marie-Tooth Disease (CMT). CMT is a group of diseases caused by inherited genetic mutations that damages the peripheral nerves outside of the brain and spinal cord, causing muscle pain, nerve pain, chronic fatigue, muscle atrophy, and difficulty breathing. We are collecting skin and blood samples to create stem cells, saliva for genetic testing, and health information which will be stored and shared with researchers worldwide to promote better understanding of CMT diseases and help advance future therapies. This study is available to children ages 5 years and older, and to adults with and without a CMT diagnosis. 

Personalized Models for Cancer Research

NYSCF is creating a repository of samples and information collected from people who have been diagnosed with a type of solid tumor cancer and from people who are healthy. We will use the samples to create a collection of tumors and stem cell-based tissue cultures called “organoids” to use in cancer research, and study them to learn about their genes and characteristics to discover better cancer treatments. We also will use the organoids to develop a laboratory test that may help inform doctors of their patient’s tumor response to cancer treatments. This study is available to adults ages 18 and older and involves transferring one or more samples (like tumor left over from surgery) from the patient’s medical provider to NYSCF.

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